Gästebuch
Gazzotti Annalisa
Samstag, 25. August 2001 15:32
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Siamo i genitori di Gazzotti Annalisa che pare affetta dalla sindrome in oggetto, attualmente è seguita a Bologna dal Dott. Gobbi e dalla Dott.ssa Giannotta che ci hanno segnalato la Vs associazione, ci farebbe piacere entrare a farne parte.
grazie
grazie
Victoria Garber
Montag, 20. August 2001 17:56
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Is there an annual conference for parents of childeren with Aicardi-Goutieres Syndrome?
Ali Esen
Montag, 20. August 2001 13:46
sevgili yegenim hacı,
sayfandan dolayıseni kutlar seni,
sevini ve durduyu öperim.
Adanadan Dayın Ali Esen
sayfandan dolayıseni kutlar seni,
sevini ve durduyu öperim.
Adanadan Dayın Ali Esen
Andrea Coxworth
Samstag, 21. Juli 2001 03:27
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My son, Thomas died on Feb. 22, 1999. I learned today at the Leukodystrophy Foundation's annual conference that Tommy had Aicardi-Goutieres Syndrome. I would like to join your association.
ISABELLA
Donnerstag, 05. Juli 2001 21:10
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Dear friends,this evening we discovered that we are not alone in our fighting for a good quality of life for our child.Antonella was born in 1986 and we had the diagnosys of Aicardi Syndrom after forty days from her birth. We have a story to tell. If you think we can give our contribute to the association contact us by email or by phone:045/8401335 Verona,Italy
389 Einträge im Gästebuch