Guestbook
Solvejg & Ulrich Petersen
Monday, 24 July 2000 19:30
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Hi
Thank you for the website. We are the parents of Sidsel(9 ) and Ida (5). Both girls have Aicardi Goutieres syndrome.If anyone will contact us, please use the e-mail adress.
Thank you
Solvejg and Ulrich Petersen, Århus, Denmark
Thank you for the website. We are the parents of Sidsel(9 ) and Ida (5). Both girls have Aicardi Goutieres syndrome.If anyone will contact us, please use the e-mail adress.
Thank you
Solvejg and Ulrich Petersen, Århus, Denmark
Geraldo Oliveira
Friday, 07 July 2000 16:07
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Desculpe escrever em português, mas acabamos de conhecer esta página.
Temos uma filha de 1 ano e meio que possui a síndrome de Aicardi-Goutières e não temos encontrado informações suficientes no Brasil para cuidarmos de nossa pequena Letícia.
Gostaria de saber mais informações, se há alguma instituição que podemos registrar o caso de nossa filha.
Somos brasileiros e deixaremos nossos endereços para recebermos informações.
Família Oliveira
(Geraldo, Malvina e Letícia)
Rua Padre Tarcísio Zanotti, nº47 - Aptº75
Jardim Yrajá - São Bernardo do Campo - SP
09781-270 - Brasil
E-mail: queumalvina@ig.com.br
Temos uma filha de 1 ano e meio que possui a síndrome de Aicardi-Goutières e não temos encontrado informações suficientes no Brasil para cuidarmos de nossa pequena Letícia.
Gostaria de saber mais informações, se há alguma instituição que podemos registrar o caso de nossa filha.
Somos brasileiros e deixaremos nossos endereços para recebermos informações.
Família Oliveira
(Geraldo, Malvina e Letícia)
Rua Padre Tarcísio Zanotti, nº47 - Aptº75
Jardim Yrajá - São Bernardo do Campo - SP
09781-270 - Brasil
E-mail: queumalvina@ig.com.br
Lebon
Wednesday, 05 July 2000 12:22
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Congratulation for the site it is an important point to understand this disease. perhaps can you contact some parents also in France
as you know there is some progress in the genetics and we (genethon and us) will collaborate with Y Crow in England to accelerate the discovery of other genes.There is also a similar disease in Canada in Indians Cree and we look for genetic anomalies with doctor Deborah Black.
as you know there is some progress in the genetics and we (genethon and us) will collaborate with Y Crow in England to accelerate the discovery of other genes.There is also a similar disease in Canada in Indians Cree and we look for genetic anomalies with doctor Deborah Black.
Fam.Werder
Saturday, 17 June 2000 19:26
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Vielen Dank für das Erstellen dieser Webseite.
Unser Sohn Kevin ist 4 1/2 Jahre Jahre alt und
leidet unter dem Aicardi Goutiere Syndrom.Wenn
sie mit uns in Kontact treten möchten nutzen sie
die E-Mail Adresse.Vielen Dank!!!!
Unser Sohn Kevin ist 4 1/2 Jahre Jahre alt und
leidet unter dem Aicardi Goutiere Syndrom.Wenn
sie mit uns in Kontact treten möchten nutzen sie
die E-Mail Adresse.Vielen Dank!!!!
Mustafa Özer
Thursday, 15 June 2000 22:39
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I would like thank all families and doctor´s
quite cordially, who have supported me to create
this website.
I would be very happy, about your entry.
Best wishes.
Mustafa Özer
quite cordially, who have supported me to create
this website.
I would be very happy, about your entry.
Best wishes.
Mustafa Özer
389 entries in guestbook