Gästebuch
Michael Taylor
Sonntag, 15. Januar 2006 00:00
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I previously wrote our story in the guest book, entry # 107 to be exact. We had just got back from the National institute of Health in Maryland for one week running numerous tests and we have results to some but many had been sent internationaly. We would really like to talk to other families with children with Aiacardi Goutieres syndrome. Our child has been diagnosed with a new phenotype. My wife and I would like to help other families with information and we would also like to receive information, If any is available. We are going through a very difficult time, and we know how you all feel. Feel free to E-Mail me or My Wife Kimberly her E-Mail is Kim218@optonline.net thank you all
June Tonge
Donnerstag, 12. Januar 2006 18:48
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Dear Desmond.
I have replied to you on the 5th January but as yet have not had your reply so I am not sure if you got my message. Please do reply so that I know that I am sending to the right place.
Regards.
June Tonge
I have replied to you on the 5th January but as yet have not had your reply so I am not sure if you got my message. Please do reply so that I know that I am sending to the right place.
Regards.
June Tonge
June Tonge
Donnerstag, 05. Januar 2006 12:47
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DEAR DESMOND,
I WAS SO PLEASED TO SEE YOUR MESSAGE FOR ME ,IT IS SO LONG SINCE I LOOKED ON THERE SO NOW I WILL SEE IF THIS GETS YOU AND THEN I WILL SEND INFORMATIVE LETTER . HAPPY NEW YEAR TO YOU ALL
LOVE AND BEST WISHES
JUNE TONGE XXXXX
I WAS SO PLEASED TO SEE YOUR MESSAGE FOR ME ,IT IS SO LONG SINCE I LOOKED ON THERE SO NOW I WILL SEE IF THIS GETS YOU AND THEN I WILL SEND INFORMATIVE LETTER . HAPPY NEW YEAR TO YOU ALL
LOVE AND BEST WISHES
JUNE TONGE XXXXX
shoron devaney
Dienstag, 22. November 2005 21:44
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luv info from sharon and branden nly 1 in ireland wit aicardi luv to talk about it 09064 34511 0863484352 1 brawny road athlone co westmeath
Juana
Freitag, 21. Oktober 2005 22:07
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Hola! Soy la madre de Camila Ríos y ella padece de AGS, quisiera saber si alguien conoce una Fruta llamada NONI, por la informacion q recibi esta contiene muchas vitaminas. Alguien podria ayudarme con esta informacion.
Muchas Gracias, Juana.
Muchas Gracias, Juana.
389 Einträge im Gästebuch