Guestbook
ROBERTO ORIANO
Friday, 30 September 2005 10:47
VERY IMPORTANT - ATTENTION PLEASE
We are proud to announce that is born the web-site of the I.A.G.S.A. (International Aicardi-Goutieres Syndrome Association) named www.aicardi-goutieres.org
The opportunity of this new site is originated from many reasons the main are:
1) The families often have got the necessity to contact fastly the doctors of the scientific committee.
2) We are very engaged as you know in the scientific research consequently we need to give information and update in real time.
If you want contact the doctors please to send an e-mail to: associazione.iagsa@tiscali.it
and visit www.aicardi-goutieres.org
For any other informations or clarifications please don't hesitate to contact us.
Yours Sincerely
Roberto Oriano
NB I would like to say you that the 2 sites are managed from the same people consequently not alternative
We are proud to announce that is born the web-site of the I.A.G.S.A. (International Aicardi-Goutieres Syndrome Association) named www.aicardi-goutieres.org
The opportunity of this new site is originated from many reasons the main are:
1) The families often have got the necessity to contact fastly the doctors of the scientific committee.
2) We are very engaged as you know in the scientific research consequently we need to give information and update in real time.
If you want contact the doctors please to send an e-mail to: associazione.iagsa@tiscali.it
and visit www.aicardi-goutieres.org
For any other informations or clarifications please don't hesitate to contact us.
Yours Sincerely
Roberto Oriano
NB I would like to say you that the 2 sites are managed from the same people consequently not alternative
glaucia
Wednesday, 21 September 2005 11:22
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I WOULD LIKE TO KWOU ABOUT THIS SYNDROME
I HAVE ONE CHILDREN
I HAVE ONE CHILDREN
ROBERTO ORIANO
Tuesday, 30 August 2005 17:19
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Dear Kim please check your e-mail address. I am not able contact you
mélanie
Saturday, 20 August 2005 14:04
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are there any french families there who would be inteseted in exchanging experiences and informations?i'm looking for french associations, and would like to know if there are any conferences organised in france or elsewhere, and how often do they gather? any piece of information would be great, thank you all. have a nice day and thank you fo the existance of this site!
Kim Stanford
Friday, 19 August 2005 23:10
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I would like to say a big thankyou to everyone who responded to my messages left on this web site. some of whom have extremely busy schedules but still managed to make contact. It is much appreciated!
THANK YOU.
THANK YOU.
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