Helloo ...
I am from Indonesia. I was very interested to visit this website . very nice and I am so inspired to work like this website , thanks

Dear Marufa,

yes indeed also our son, he is now 16 years old, has sleeping problems. In the night he is long awake. And during the day he sleeps often in his wheelchair. Maybe a hormone "Melatonin" could be a solution. But I think you should ask your pediatrician for Melatonin. We have not try it yet.

My best wishes to you.
Mustafa

Hi
I have a son with AGS . Was diagnosed for almost four years ago.
I see that someone writes that they have had positive results with usign L-carntine.
Where do you get this? Was it your doctor that recommended this to you?
Thank you for your feedback!

Best regards
Kine

hi all,my son is having serious sleeping problem since 1 month, it was totally ok before that but now he is not sleeping at night and fulfilling the shortage almost the whole day time.
for which he is missing doong anything and learning anything.
he is on 1 convulsion drugs KEPRA and another for loosing limps clonosipm which also helped to sleep both medicines are working well but at the wrong time what os causing me sleepless nights also that is not a big deal big deal is I failed to habituated him with a routine. he is now 2.9 years old and he is healthy..is there anyone who faced the same with their babies? is there any solution of this?

Hi,I'm Mrs.Shukti from Bangladesh and my 2.9 years old boy named Shehran is diagnosed of AGS just 1 month back;though the doctors from Singapore National University Hospital and Christian medical collage of vellore chennai were quite confirmed about AGS befor diagnosed after seeing his symptoms.
In Bangladesh we Do not have any specialist Hospitals or doctors on AGS and not even any good one on peditriatic nuro. But as a parents we do not have the guts to give our son no treatment and for this we have to take him Singapore and some times for financial reasons in chennai almost every after 3/4 months.

We are not very solvent financially and my husband is the only earning member write now as I had to leave my job to look after my son.we are financial problems very badly and it's increasing day by day with the increase of husband wife problems,day to day food problem and so on.
I'm requesting this institution to donate our family to keep continuing the treatment of our son, if you could donate $10000 we could able to tale.our son 2/3 times in singapore.
For authentication and query I'm also send you the recent report of our son.
yes, I'm not known to any of you but pls consider me as someone who is from a country where no facilities we have to keep our son better.I can only request you and pray to God that you'll understand my problem, my situation and the helplessness as a parents.
a
Regards,
Mrs.Marufa Neeger Shukti
Bangladesh