Guestbook
Mustafa
jeudi 29 mai 2008 22:50
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Dear Fiammetta!
It is a great pleasure to hear from you.
I see you are able now to read and writte to our guestbook. Hope to see many more entrys from you also in the future.
Ciao and best wishes
Mustafa
It is a great pleasure to hear from you.
I see you are able now to read and writte to our guestbook. Hope to see many more entrys from you also in the future.
Ciao and best wishes
Mustafa
Mustafa
jeudi 29 mai 2008 22:46
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Dear Rina!
I know many families where after a child with AGS the second and also the third child is not affected on AGS. But the risk to get again a child with AGS is at 25% for every pregnancy. But at the present it can be made test during the pregnacy to see if the child will affected on AGS or not. But I am not sure if this is possible for each family. But I am sure the docs can say you if this test can be made also in your family. If you have any queation you are welcome to write to me or to one of the other parents.
My best wishes
Mustafa
I know many families where after a child with AGS the second and also the third child is not affected on AGS. But the risk to get again a child with AGS is at 25% for every pregnancy. But at the present it can be made test during the pregnacy to see if the child will affected on AGS or not. But I am not sure if this is possible for each family. But I am sure the docs can say you if this test can be made also in your family. If you have any queation you are welcome to write to me or to one of the other parents.
My best wishes
Mustafa
Sandie Lindemann
mercredi 28 mai 2008 06:04
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I have 3 daughters my eldest daughter Kirsten has AGS so we were lucky enough to have two other children after Kirsten without AGS. Ages 16, 14 & 9
Rina Hall
mercredi 28 mai 2008 05:28
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I am interested in having another child. Is there anyone out there who had a child after there child with Aicardi Goutieres Syndrome and are they normal?
Rina Hall
mercredi 28 mai 2008 05:25
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I have a three year old little boy with Aicarci Goutieres Syndrome. How would I be able to get in touch with other families? I live in the United States.
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