Guestbook
AJ Rowan
mardi 26 mars 2002 04:04
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First of all, thanks for the web page on AGS. I am
especially intrested in knowing about this because
I have a Nephew with this disorder. Dakota was born
June 14, 2000. He is currently in ICU, Pediatratics
in Madison, Wisconsin. I am in the process of setting up a benefit for him. Any information on this disorder would be greatly appreciated. My E-Mail address is rowanaj@netins.net Thank you, AJR
especially intrested in knowing about this because
I have a Nephew with this disorder. Dakota was born
June 14, 2000. He is currently in ICU, Pediatratics
in Madison, Wisconsin. I am in the process of setting up a benefit for him. Any information on this disorder would be greatly appreciated. My E-Mail address is rowanaj@netins.net Thank you, AJR
Dominika Mandrek
jeudi 21 mars 2002 23:25
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I am very interested in this syndrome, as I am interested in genetical syndromes at all. I saw it today on TV for the first time.
I`m a psychology student. I wish all the aicardi-goutieres-children and their families all the best.
I would also appreciate further information.
I`m a psychology student. I wish all the aicardi-goutieres-children and their families all the best.
I would also appreciate further information.
manda
mercredi 13 février 2002 16:03
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thanks for the info
Kelsey Forbis
mardi 27 novembre 2001 19:55
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i think that this is a really terrible disease. if you have any more info on the subject, please e-mail me at: kel_c1989@hotmail.com !thanx bunchies! ~!buh~bye!~ luv, kelsey
Alberto F. Ríos
samedi 17 novembre 2001 02:14
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Soy hermano de camila y quisiera información sobre algún medicamento o tratamiento para poder ayudarla en su reavilitación.
Camila tiene 19 meses, pesa 10kilos, no se sienta no camina pero lo intenta y tiene mucha fuerza.
Camila tiene 19 meses, pesa 10kilos, no se sienta no camina pero lo intenta y tiene mucha fuerza.
389 entries in guestbook