Guestbook
Monica van Ginkel
Saturday, 23 August 2003 16:08
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Hello,
I am mother of four children. Three of them have AG.
We are doing fine !
I am mother of four children. Three of them have AG.
We are doing fine !
Pablo Grecco
Thursday, 21 August 2003 15:27
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Hi everyone... I just wanna wish luck and faith to every special family that has some special child with Aicardi-Goutieres Syndrome. I can imagine how hard is this kind of situation. But I believe that God is big and good enough. Consequently, important is keep the faith ever. In additional, I wanna send my best feeling to "Família Oliveira", in special to Letícia (she is beautiful!). I'm brazilian too, from São Paulo and I just received her father's e-mail with her history. I hope she is fine and happy. So, GOOD LUCK and don't forget... KEEP THE FAITH EVER!!!!!
Pablo Grecco - São Paulo - Brasil
Pablo Grecco - São Paulo - Brasil
Priscilla Tansey
Friday, 08 August 2003 18:12
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...
Thomas Immig
Thursday, 07 August 2003 12:02
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Super Seite !
Es ist die einzige Seite, wo man etwas über das Aicardi-Goutieres-Syndrom erfahren kann.
Unsere 7 Monate alte Tochter Lilly leidet unter AGS.
Die Diagnose erfuhren wir letzte Woche am 29.07.03 und versuchen nun Kontakt zu anderen Betroffenen zu schließen.
Wer also etwas Neues erfährt oder nur reden möchte kann uns unter oben angebenen E-Mail-Adressen diese Neuigkeiten mitteilen.
Danke im voraus
Gruß aus Soest
Thomas Immig
Es ist die einzige Seite, wo man etwas über das Aicardi-Goutieres-Syndrom erfahren kann.
Unsere 7 Monate alte Tochter Lilly leidet unter AGS.
Die Diagnose erfuhren wir letzte Woche am 29.07.03 und versuchen nun Kontakt zu anderen Betroffenen zu schließen.
Wer also etwas Neues erfährt oder nur reden möchte kann uns unter oben angebenen E-Mail-Adressen diese Neuigkeiten mitteilen.
Danke im voraus
Gruß aus Soest
Thomas Immig
389 entries in guestbook