Guestbook
Carolina Salazar Aguirre
Sunday, 01 September 2002 16:35
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Estoy interesada por saber todo sobre la enfermedad y tratamiento llevados a cabo en particular, y la diferencia tanto en diagnostico como en tratamiento que pueda existir con enfermedades como el IMOC
Michaela
Wednesday, 17 July 2002 22:35
Eine schöne und mit Liebe hergestellte seit. Ich wünsche allen betroffenen, das sie noch lange Freude an Ihren Kindern haben und vor allem sehr viel Kraft für Ihre Kinder aufbringen. Auf den Fotos sieht man nur liebevolle Familien. Alles Gute sagt Justin und Mama
Cheryl Leake
Monday, 17 June 2002 16:44
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I don't know where to start, but I would like to say that your web site may help us to diagnose our daughter, Sarah. She is 6 and a half now and has not ever been tested for alpha- interferon, but has had many if not all of the symptoms listed by your families. She had sleep apnea, red hands and feet, sudden onset pain in hip,legs, feet, hands and face, petit mals progressing to grande mals, stiff joints, but not severe enough for surgery, she even has had touble with allergies and food dyes. Who in the USA can read an MRS for alpha- interferon? I think this may be our only way to be sure since she is so old. I really thought we would lose her at two yrs old, but she made it and is our little miracle or determination.
Marcie
Sunday, 19 May 2002 01:44
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My best friend's daughter has this syndrome. She was told when 3 months pregnant her daughter might have mild down syndrome. She was prepared for that,but was devasted when the baby was diagnosed with Aicardi's. She has been in the hospital 75% of her life and is 2 years and 2 months old. I searched the Syndrome to help understand more. Thank you for providing some information.
Roberta Fontana
Friday, 17 May 2002 09:36
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Our friends' son is affected by the syndrom and I wanted to understand what this desease is about. I found your website very well done and easy to understand.
389 entries in guestbook