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Suzanne
mercredi 14 février 2007 00:15
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I did not mean to upset any one when I wrote"God Bless all families & thier children'.Maybe I should of said "God help all Families & the Doctors better understand this Heartbreaking illness"
I pray always that some one out there somewhere can find a cure.
I pray always that some one out there somewhere can find a cure.
Renee Hawes
vendredi 2 février 2007 19:27
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my 4 month old granddaughter was just diagnosed with Aicardi-Goutieres. any information from other families that are dealing with this who can help me understand would be appriciated. write to my e-mail rcharli4664@aol.com. thank you
Suzanne
vendredi 26 janvier 2007 03:47
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GOD BLESS ALL FAMILIES & THIER CHILDREN
john
lundi 22 janvier 2007 15:45
I understand the fear of parents with ags about their childs length of life and quality. However our daughter Katie who is severaly affected is 2 years old and you quickly get to understand your childs simple needs and that they love attention,cuddles,being held and simply being part of a loving family. Enjoy your child as much as your child enjoys you .
DONNA
mercredi 17 janvier 2007 02:31
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hi this is my daughters email i use hers my daughter has AGS and she was diagnoised last year with it in morgantown wv i really am scared and dont know alot so please maybe someone could be a friend and email us and chat with myself thank you
389 entries in guestbook