Guestbook
Evan Duffield
mercredi 27 décembre 2006 00:28
Cette adresse e-mail est protégée contre les robots spammeurs. Vous devez activer le JavaScript pour la visualiser.
anyone who has a child with this syndrome please contact me so we can understand what we are up against for evans sake...any part of the world.thank you !!
larry and emma
dimanche 10 décembre 2006 22:25
Cette adresse e-mail est protégée contre les robots spammeurs. Vous devez activer le JavaScript pour la visualiser.
hi, this is "evans" mum and dad, can the mum who lives in australia with her daughter with (a.g.s )pleases contact us a.s.a.p, we are now on the internet and this is our address.......thanks larry and emma, hope to hear from you soon
Jean Maurer
vendredi 8 décembre 2006 14:00
Cette adresse e-mail est protégée contre les robots spammeurs. Vous devez activer le JavaScript pour la visualiser.
Our daughter, Sadie, is being tested for AGS. Her blood was sent to Dr. Crow at Leeds University in England, who is testing her on a research basis. She was suspected to have a prenatal infection, but all tests came back negative. She has small calcifications in her white matter. She is developmentally delayed (she is 10 months and is just learning to hold her head up.) She has many symptoms of AGS, however she has never had any fevers. Has anyone else's child been diagnosed without having fevers. Also, her progress has been slow, but she has never lost any abilities that she previously had. I would be interested in speaking to anyone else who has been through this. We live in South Carolina.
emma & larry
vendredi 1 décembre 2006 18:50
Please could someone advise me on how to become a member of this website and how we can put some picture of our son on the webpage.
emma & larry
vendredi 1 décembre 2006 18:27
Cette adresse e-mail est protégée contre les robots spammeurs. Vous devez activer le JavaScript pour la visualiser.
Our son Evan benjamin started having feeding problems four weeks from birth. after many many tests to find the cause, Doctors came back with A.G.S. we were devastated.he has to endure alot of operarations on his joints and will need surgery to his stomach so he can feed.we have now come to terms with Evans condition and feel we can now talk to other people about this condition. he has had a long fight to get where he is today (he is now nine and a half months)he has been very irritable but this has now subsided alot but he still gets his days of sheer discomfort ..usually on a monday and tuesday but then starts to slow down. he will never feed, walk or talk.He will always have to be tube fed we are from Wales in the u.k if anyone would like to share their experiences and help us to gain much need information on this rare syndrome, we would be glad to share our experiences in return. ps. Evan is the only child in our country to have this syndrome and only one of four children in the whole of the united kingdom.
389 entries in guestbook