Guestbook
Mustafa
lundi 12 juin 2006 21:48
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Dear Parants,Doctors and Friends!
I would like to thanks again on this way for the 2. AGS-Meeting in Pavia!
Many many thanks to the specialists, the reserachers, the docs and of course to
the parants who has taken part on the meeting.
My spezial thanks goes especially to Mrs. Fiammetta Boni, Prof Lanzi, Prof. Fazzi and to Roberto and Nadia Oriano who has made possible this meeting.
Thank you in the name of all parants for your efforts and for the time which you have spend to
organize such meeting.
With kind regards
Mustafa Özer
I would like to thanks again on this way for the 2. AGS-Meeting in Pavia!
Many many thanks to the specialists, the reserachers, the docs and of course to
the parants who has taken part on the meeting.
My spezial thanks goes especially to Mrs. Fiammetta Boni, Prof Lanzi, Prof. Fazzi and to Roberto and Nadia Oriano who has made possible this meeting.
Thank you in the name of all parants for your efforts and for the time which you have spend to
organize such meeting.
With kind regards
Mustafa Özer
Juliet Maguire
mardi 6 juin 2006 12:16
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Hi.everyone. Just wanting to send my best wishes to everyone going to the conference in a few days. Our son, Thomas, has AGS and is 9yrs old. We would have loved to come but New Zealand is soooo far away and we could not afford it. Hope everyone learns alot and has an enjoyable time. All the best. Feel free to email me anytime for support and or an understanding ear.
ROBERTO ORIANO
vendredi 19 mai 2006 14:29
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Dear June
Your e-mail is out of order.
Please contact me urgently
A hug
Roberto
Your e-mail is out of order.
Please contact me urgently
A hug
Roberto
June tonge
samedi 13 mai 2006 19:00
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Hi mustafa ,Iwas not having a go at you it is that i am in contact with a family in Scotland England and they say that no one replys to them and it would be better if there was a chat room for us to speak and not always be the web site so we could just talk about all things ,hope to see you in Pavia i am looking forword to being able to put a face to a name .take care love jUNE AND rOSS .XXXXXXXXXXXXX
June tonge
samedi 13 mai 2006 18:54
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Hi Roberto thankyou for your reply,i do know that Mustafa does his best but there are familys out there who feel that no one is there to talk to .And i know that we are all in the same boat so to speak but the web site is no good if there is noone there to talk to.And i like you who have children with this awfull syndrome it is not always easy to do but we have to try and support eachother that is what this site is all about.Hope to see you in Pavia and be able to put a face to names .Love to you all hope Diego is well Ross as a bad chest infection at the moment .xxxxxxxxxxx
389 entries in guestbook