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Sandie Lindemann
dimanche 21 septembre 2003 06:13
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I have a 12 yr old daughter diagnosed with AG we live in Australia I don't know of any other children in Australia with AG
Geraldo Oliveira
samedi 6 septembre 2003 12:26
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Cerco informazioni per la mia bambina che soffre di questa sindrome di AICARDI-GOUTIERES. Se cortesemente potete auitarmi e inviare al mio indirizzo eventuali infomazioni : Geraldo Oliveira Rua Padre Tarcisio Zanotti n. 47- Apt°75 Jardim Yrajà- Sào Bernardo do Campo-SP . BRASIL-09781-270
Samantha Nunes
jeudi 28 août 2003 17:45
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Sou de São Paulo (Brasil), e fiquei conhecendo o site através de um e-mail que recebi, escrito pelo próprio pai, relatando a história da Letícia (Letícia Alves Oliveira), portadora da síndrome de AICARDI GOUTIÉRES.
Gostaria de parabenizá-los pelo trabalho maravilhoso e o apoio que é dado para as famílias dessas crianças.
Gostaria de parabenizá-los pelo trabalho maravilhoso e o apoio que é dado para as famílias dessas crianças.
Malvina
mercredi 27 août 2003 17:48
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I have a child who has the syndrome Aicardi-Goutieres and I would like to know some family that has the same problem, so I could get more information about. We are brazilians, living in Sao Paulo. "(This e.mail was writing by Tania, who doesn't know this family personaly, but she got some mail from friends of the family who is trying to help them)"...So, I (Tania Clemente) hope that you can help them as well, just sending some information about some cases from this Aicardi.
Ralph Galewski, MD, MPH
samedi 23 août 2003 17:15
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Dear Sirs:
I am a graduated MD, searching and practicing electroacupuncture in the neurological field. Some of my articles can be seen at www.lycos.com searchig under Galewski Ralph Electroacupuncture.
I want to share with you that in 2 days I will begin the treatment of a 5 years old girl with Aicardi-Goutieres Syndrom.
My wotking place is Cali, Colombia, phone number 57 25583737
I will keep you informed about the development of this treatment.
I am a graduated MD, searching and practicing electroacupuncture in the neurological field. Some of my articles can be seen at www.lycos.com searchig under Galewski Ralph Electroacupuncture.
I want to share with you that in 2 days I will begin the treatment of a 5 years old girl with Aicardi-Goutieres Syndrom.
My wotking place is Cali, Colombia, phone number 57 25583737
I will keep you informed about the development of this treatment.
389 entries in guestbook