Yes many of the children which born in the nineties are fortunately alive.

In the 'children' section of this webpage therea are many kids born in the nineties. Are they all still alive?

My son Lee was diagnosed with aicardi-goutiere syndrome just before his second birthday.It has been very tough.he has now just started primary school and am so pround of him.he is nearly 5 now and we've been told now that the older he gets the worse he will be.he has not yet had any fits but the only concern is his weight as he only weighs as much as a 9 mnth old.we live on the Isle of Man and he deals alot with Alder hey.We know just as much as the doctors here but they are doing their very best to make Lee comfortable and happy and thats all i could hpe for.He is the happiest little boy in the world

I have just been told that a distant cousin may have Acardi-Goutieres syndrome. This site has pointed me in the right direction, thank you. Sarah at Mens Engagement Rings

Hi All, I was hoping to touch base with anyone who may have ideas on teaching yes/no to a 4 year old with AGS2. Also helpful would be any tips on teaching to blink on command and in response to questions. Any other communication techniques are greatly appreciated.
Thanks,
Gillian