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KAROLINA ALVARENGA Samstag, 20. März 2010 03:02
H1N1
HI
HERE IN BRAZIL HAPPENS VACCINE VIRUS H1N1.
WANT TO KNOW IF MY CHILD WITH AGS 2 CAN TAKE THIS VACCINE.

THANK

KAROL, MOTHER OF PEDRO CORDEIRO

Silvana Sonntag, 14. Februar 2010 19:19
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Batista
Olá me chamo Silvana e tenho uma filha com 01 ano e 09 meses com a Síndrome de Aicardi-Goutiéres, caso haja alguma novidade a cerca desta síndrome por favor envie e-mail pra silvana-cunha@ig.com.br, pois não tenho muitas respostas sobre ela e se há no Brasil alguma Assossiação que fale a respeito. Obrigada.

Claudia Sonntag, 31. Januar 2010 03:00
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THANKS SO MUCH CREATORS OF THE SITE
I found this site today (January ,2010). Sixteen years ago it did not exist, and the name Aicardi-Goutieres Syndrome was unknown to a lot of people, including doctors. I am a mother of a beautiful girl named Isabella, she will be 16 in April. I never got a formal diagnose for her, but most likely she has Aicardi-Goutieres Syndrome. If anybody wants to exchange mails, or exchange information, please write me!

Claudia

charles pearce Donnerstag, 14. Januar 2010 16:20
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mr
am i able to give the story of my daughters problems with a-g s, or would it be considered too long as they covered 14 complaints. Chas

Dawn Sonntag, 06. Dezember 2009 13:30
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My 4 month old son was diagnosed with Acardi Goutieres Syndrome.I just found this site and would like to know what to expect and also any information regarding this syndrome.

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