Guestbook
David Dennison
Sunday, 18 March 2001 17:43
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Can this disease be cured by bone marrow transplantation?
Adriana de Sousa Burgani
Thursday, 08 February 2001 00:38
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I am Fisioterapist of Leticia (Brazil) and I would like to receive more information about this desease, such as Books, Links, Webpages, Associations and Science Articles.
I am developing a case study and I need to Know more.
Thanks in advance.
I am developing a case study and I need to Know more.
Thanks in advance.
itigo
Tuesday, 28 November 2000 00:52
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Aicardi-Goutieres Syndrome
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annarita ciaramicoli
Wednesday, 27 September 2000 08:05
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We are Annarita e Massimiliano Rella our 2nd 4 years
old son is probabily affected of aicarrdi syndrome
We would like to give and have some more information
about the disease.Phone number 00390623231747
old son is probabily affected of aicarrdi syndrome
We would like to give and have some more information
about the disease.Phone number 00390623231747
Fiammetta Boni Longo
Sunday, 17 September 2000 18:00
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I would like to send greetings to all our children and their families, both those I know in person, and those from further afield of whom I have received news via letters and via this website.
The association is working very hard to try and improve the conditions in which you, and your children, live.
We are in contact with a number of physicians from all over the world who have indicated that they are willing to work with us. We are hoping to gather them all together next year for a meeting in Italy (at the University of Pavia), an event that will be of immense scientific value and very important from the point of view of sharing the problems faced by families.
I will contact you again in the near future with further news.
Fiammetta Boni Longo
President,IAGSA
Via Vittadini, 1
27100 Pavia - Italy
e-mail: fiammetta.boni@libero.it
The association is working very hard to try and improve the conditions in which you, and your children, live.
We are in contact with a number of physicians from all over the world who have indicated that they are willing to work with us. We are hoping to gather them all together next year for a meeting in Italy (at the University of Pavia), an event that will be of immense scientific value and very important from the point of view of sharing the problems faced by families.
I will contact you again in the near future with further news.
Fiammetta Boni Longo
President,IAGSA
Via Vittadini, 1
27100 Pavia - Italy
e-mail: fiammetta.boni@libero.it
389 entries in guestbook